An annual Global Pituitary Advocacy Meeting in Zurich was organized for patient advocates from 2012 – 2014 by Novartis. Patient advocates from 25-30 countries joined and delegates discussed the most critical issues they were facing as national communities. The delegates met outstanding endocrinologists, nurses, and other professionals, and learned about the various diseases and most recent scientific findings in the area. The outcome of the very first meeting, was the ‘Declaration of Zurich’, prepared and signed by the delegates, including 10 aspects of patient life, which should be implemented in medical care!
In October 2014 at the 3rd Global Pituitary Advocacy Meeting, the delegates decided to create an independent, global organization named the ‘World Alliance of Pituitary Organizations’. The Steering Committee held it’s first meeting on October 19, 2014.
The first official meeting and event was the WAPO Summit, in April 2016. The event was fully organized by the Steering committee, and we found three sponsors for it. It became the first formal meeting for WAPO incorporation.
At the AGM, included in the Summit, the first Board of Directors was elected and, on May 30th 2016, the World Alliance of Pituitary Organizations was registered as an association in the Dutch Chamber of Commerce.