Adrenal Insufficiency United
Adrenal Insufficiency United is working to improve the lives and empower those affected by adrenal insufficiency through advocacy, awareness, collaboration, education, research and support.
http://aiunited.org
Partners & Sponsors
OUR ORGANIZATIONAL PARTNERS
BijnierNET
The BijnierNET will be a national, digital community operated for and by patients with adrenal gland disorders and their healthcare providers.
https://www.bijniernet.nl
FindMeCure
FindMeCure is the missing mediator between the clinical research and the people looking for more treatment options. Currently, there are over 50 000 available clinical trials researching new drugs, innovative therapies and medical devices. Each of those is a potential new treatment. However, none could be in use for you unless you know how to find them, choose the right one and apply for participation.
Find the right treatment in development now on
https://www.findmecure.com/
ICOSEP – International Coalition of Organizations Supporting Endocrine Patients
ICOSEP is a federation of patient advocate associations representing more than 35 countries, medical societies and child advocate supporters.
http://icosep.org
International Society of Endocrinology (ISE)
ISE represents the global endocrine community through its society members and partners; national and regional organisations of clinicians, researchers, academics, nurses, dietitians, patients and other allied health professionals active in the field of endocrinology.
Oxford PharmaGenesis
Founded in 1998, Oxford PharmaGenesis is proud to be a leading independently owned consultancy in a sector increasingly populated by corporate communications conglomerates.
http://www.pharmagenesis.com/
Patient Focused Medicines Developement
The Patient Focused Medicines Development (PFMD) group, established in 2015, Its goal is to bring together initiatives and best practices that integrate the voice of the patient throughout the lifecycle of medicines development
http://patientfocusedmedicine.org/
Patient Worthy
Patient Worthy® is an online publication that provides relevant information to rare disease patients, caregivers and advocates alike.
http://patientworthy.com
Pituitary World News
PWN is a publication and a publishing platform dedicated to helping diagnose people properly and early by increasing awareness of pituitary disorders and providing a platform for communications, collaborations, creativity, and innovation. We want our partners and collaborators to share their story and expertise, and be part of this movement to change how we spread knowledge and information.
OUR ORGANIZATIONAL SPONSORS
Chiasma
A biopharmaceutical company focused on improving the lives of patients who face challenges associated with existing treatments for their rare and debilitating diseases.
http://www.chiasmapharma.com
Crinetics
Crinetics is a clinical-stage pharmaceutical company focused on the discovery, development, and commercialization of novel therapeutics for rare endocrine diseases and endocrine-related tumors. We have discovered a pipeline of oral nonpeptide new chemical entities to treat a variety of rare endocrine diseases where treatment options have significant efficacy, safety and/or tolerability limitations. Our vision is to build the leading endocrine company which consistently pioneers new therapeutics to help patients better control their disease and improve their daily lives.
https://www.crinetics.com/
HRA Pharma
HRA Pharma is a fast growing, innovative pharmaceutical company empowering people throughout the world to improve their lives by developing accessible, value added, healthcare solutions. The company has a fully-dedicated Endocrinology & Rare Diseases division, whose mission is to make meaningful health solutions broadly accessible to rare disease patients with a portfolio of medicines that address Cushing’s syndrome (CS) and Adrenal Cortical Carcinoma (ACC).
https://www.hra-pharma.com/
Ipsen
Ipsen
Ipsen is a dynamic and growing global biopharmaceutical group focused on innovation and Specialty Care that is improving people’s lives through differentiated and innovative medicines in Oncology, Neuroscience and Rare Diseases. Our strong position in Specialty Care, combined with our heritage in Consumer Healthcare, provides us with the scale, expertise and stability needed to make a sustainable difference for people in tomorrow’s healthcare environment.
For more information you can visit
https://www.ipsen.com/
Novartis
Novartis is a global healthcare company based in Switzerland that provides solutions to address the evolving needs of patients worldwide.
https://www.novartis.com
Pfizer
Discovers, develops, manufactures and markets prescription human and veterinary medicines, and consumer healthcare products.
http://www.pfizer.com
Strongbridge Biopharma
Strongbridge Biopharma is a global commercial-stage biopharmaceutical company focused on the development and commercialization of therapies for rare diseases with significant unmet needs.
http://www.strongbridgebio.com