At WAPO, we believe in partnership that helps to engage bright minds and pool resources from across the community to move faster towards the vision we share. We look for leaders, thinkers, and doers who can analyze, research, plan, and implement using their knowledge and experience in collaboration with WAPO for the benefit of the community. We also look for organizations ready to support our activities with their resources of all kinds, and we are ready to support them in return. Interested in becoming our partner? Contact us!

Adrenal Insufficiency United logo

Adrenal Insufficiency United

Adrenal Insufficiency United is working to improve the lives and empower those affected by adrenal insufficiency through advocacy, awareness, collaboration, education, research and support.

AdrenalNET / BijnierNET

Adrenals.eu is the international hub for information on and products for adrenal gland patients, carers, pediatric endocrinologists and healthcare practitioners.
The website includes validated medical information, often made in collaboration with health care professionals and patient focus groups.


FindMeCure is the missing mediator between the clinical research and the people looking for more treatment options. Currently, there are over 50 000 available clinical trials researching new drugs, innovative therapies and medical devices. Each of those is a potential new treatment. However, none could be in use for you unless you know how to find them, choose the right one and apply for participation.
Find the right treatment in development now on

Let’s Cure ACC

Let’s Cure ACC is an international association dedicated to Adrenal Cancer (a rare disease – less than 1 person over 1 million per year). It offers detailed, accurate and comprehensible information about the disease treatments, but also hope through stories of patients, and the lists of national associations and of the leading medical experts WORLWIDE who are supporting Let’s Cure ACC. Available in multiple languages. The aim is to raise awareness on ACC and promote self-learning for patients and their care-givers.


International Society of Endocrinology (ISE)

ISE represents the global endocrine community through its society members and partners; national and regional organisations of clinicians, researchers, academics, nurses, dietitians, patients and other allied health professionals active in the field of endocrinology.


Oxford PharmaGenesis

Founded in 1998, Oxford PharmaGenesis is proud to be a leading independently owned consultancy in a sector increasingly populated by corporate communications conglomerates.

Patient Focused Medicines Developement

Patient Focused Medicines Developement

The Patient Focused Medicines Development (PFMD) group, established in 2015, Its goal is to bring together initiatives and best practices that integrate the voice of the patient throughout the lifecycle of medicines development

Patient Worthy

Patient Worthy® is an online publication that provides relevant information to rare disease patients, caregivers and advocates alike.

Pituitary World News

PWN is a publication and a publishing platform dedicated to help diagnose people properly and early by increasing awareness of pituitary disorders and providing a platform for communications, collaborations, creativity and innovation.  We want our partners and collaborators to share their story and expertise, and be part of this movement to change how we spread knowledge and information.




Camurus is a growing biopharmaceutical company with headquarters in Sweden, committed to improving the lives of patients with severe and chronic diseases. Camurus is conducting clinical trials in some rare diseases such as acromegaly and neuroendocrine tumors.

More information on ongoing trials in acromegaly can be found here



Crinetics is a clinical-stage pharmaceutical company focused on the discovery, development, and commercialization of novel therapeutics for rare endocrine diseases and endocrine-related tumors. We have discovered a pipeline of oral nonpeptide new chemical entities to treat a variety of rare endocrine diseases where treatment options have significant efficacy, safety and/or tolerability limitations. Our vision is to build the leading endocrine company which consistently pioneers new therapeutics to help patients better control their disease and improve their daily lives.

HRA Rare Diseases

HRA Rare Diseases is a fast growing, innovative pharmaceutical company empowering people throughout the world to improve their lives by developing accessible, value added, healthcare solutions. The company has a fully-dedicated Endocrinology & Rare Diseases division, whose mission is to make meaningful health solutions broadly accessible to rare disease patients with a portfolio of medicines that address Cushing’s syndrome (CS) and Adrenal Cortical Carcinoma (ACC).


Ipsen is a dynamic and growing global biopharmaceutical group focused on innovation and Specialty Care that is improving people’s lives through differentiated and innovative medicines in Oncology, Neuroscience and Rare Diseases. Our strong position in Specialty Care, combined with our heritage in Consumer  Healthcare, provides us with the scale, expertise and stability needed to make a sustainable difference for people in tomorrow’s healthcare environment.

For more information you can visit


Novartis is a global healthcare company based in Switzerland that provides solutions to address the evolving needs of patients worldwide.



Breakthroughs that change patients’ lives

At Pfizer, we apply science and our global resources to bring therapies to people that extend and significantly improve their lives. We strive to set the standard for quality, safety and value in the discovery, development and manufacture of health care products, including innovative medicines and vaccines. Every day, Pfizer colleagues work across developed and emerging markets to advance wellness, prevention, treatments and cures that challenge the most feared diseases of our time. Consistent with our responsibility as one of the world’s premier innovative biopharmaceutical companies, we collaborate with health care providers, governments and local communities to support and expand access to reliable, affordable health care around the world. For more than 150 years, we have worked to make a difference for all who rely on us.

To learn more, please follow us on TwitterInstagram and like us on Facebook.

Recordati Rare Diseases

At Recordati Rare Diseases, we focus on the few – those affected by rare diseases. We believe that every single patient has the right to the best possible treatment. Patients with rare diseases are our top priority. They are at the core of our planning, our thinking and our actions.


Strongbridge wapo sponsor

Strongbridge Biopharma

Strongbridge Biopharma is a global commercial-stage biopharmaceutical company focused on the development and commercialization of therapies for rare diseases with significant unmet needs.

WAPO Contacts

WAPO believes that the strength of a global network of national pituitary patient organizations will lead to improved diagnosis, treatment and care for pituitary and adrenal patients worldwide.

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