WAPO believes that the strength of a global network of national pituitary patient organizations will lead to improved diagnosis, treatment and care for pituitary and adrenal patients worldwide.

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WAPO is a non-profit, umbrella organization that brings together national pituitary patient organizaitons around the world.
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#MedSafetyWeek – Reporting Side Effects of Medicines

Theme: Raising Awareness + Reporting the side effects of  medicines; When: between 2-8 November 2020;This is an extremely important issue for people living with rare diseases who often take lots of different medications side by side, with often too little known about the medicines used in small populations. EURORDIS has a website section dedicated to

ICE 2021: 15. International Conference on Endocrinology

ICE 2021 aims to bring together leading academic scientists, researchers and research scholars to exchange and share their experiences and research results on all aspects of Endocrinology. It also provides a premier interdisciplinary platform for researchers, practitioners and educators to present and discuss the most recent innovations, trends, and concerns as well as practical challenges

Rare Disease Day

The main objective of Rare Disease Day (annually) is to raise awareness amongst the general public,  policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases and their impact on patients’ lives.