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Tag Archive for: diagnosis

Worldwide Acromegaly Study


Do you want to help Acromegaly patients get diagnosed sooner?

We know that earlier diagnosis usually improves outcomes and quality of life. Please take part in our international research study that uses computer technology to try to diagnose patients sooner by detecting the earliest features of Acromegaly.

We are looking for individuals who currently have or previously had Acromegaly (including gigantism) or other types of pituitary adenomas/tumours to participate.

Your participation in this study is critical to help develop the most accurate tools for diagnosis and greatly improve the quality of life of future patients. In this study, you will be asked to upload your photographs and complete a questionnaire, for use in a machine learning analysis. You can access the study using the link provided below.

If you have questions about taking part in this study, you can send an email to the research team at acromegaly-research@smh.ca or telephone at 001-416-864-5312.

Thank you for considering participation in this project.

For more information on the study or to participate, please click on the URL link below or enter it in your browser or scan the QR code:

https://lnkd.in/gUsBYFFK

https://www.wapo.org/wp-content/uploads/2023/04/Research-globe-image.jpg 1080 1080 Muriël Marks https://www.wapo.org/wp-content/uploads/2025/11/logo-wapo-worldwide-adrenal-and-pituitary-organizations-1.svg Muriël Marks2026-01-15 11:17:182026-01-15 11:17:18Worldwide Acromegaly Study

WAPO Website & 2023 Webinar Series

“Your diagnosis doesn’t have to define you!”  ….. well-spoken words by Ignas Meškauskas, Mental Health Coach in the Netherlands.. Ignas kick-started our WAPO 2023 Webinar series, with this impactful session entitled “My new identity after diagnosis”, with invaluable content for anyone with a diagnosis of a pituitary disease or long-term condition. ‘Acceptance’ is the keyword in this webinar and Ignas shares a lot of his own experience and supportive ideas that will help people with any diagnosis to accept their new reality.

We met Ignas last year at the WAPO Global Summit in 2022, where he translated for his Lithuanian friend . During the event, he became more and more involved with the speakers and delegates and with his knowledge and the benefit that he can bring to our community, he prepared his presentation for the 2023 webinar series.

The set-up for our series of 9 webinars in 2023 is different from 2022. This year, the webinars will be pre-recorded and released on the WAPO website, roughly each month (except for Summer and December).
We received requests from the WAPO pituitary community about the different time zones and availability of the webinars to share with other members and we feel that this new approach will solve this issue. The webinars will be made available– in English and Spanish – directly from the WAPO website, in the Library section, and in open access. You will find the direct links below the article as well as the planned webinar topics for the year.

You may also have noticed that the WAPO website has had a make-over in the past 6 months, and is available from 27th January onwards, via www.wapo.org (same address, new content!).
The Pituitary Disease section has been completely refreshed, with updated information and accompanying animated videos, which explain the diseases and treatment in an easy, engaging way. This has been made possible by the Federation of International Nurses in Endocrinology (FINE), with special thanks to Christine Yedinak!

Currently, we are looking for additional disease, or health and exercise content to add to our specific website pages, e.g. research outcomes, clinical trial information, etc.
Please feel free to send any information that you feel would be of interest to the community to mail@wapo.org and we will be happy to include on the website. The content doesn’t have to be in English but in any other language.

Discussed topics: 

  • Webinar Ignas Meškauskas:
    English:
    https://www.wapo.org/library/webinar-1-2023-ignas-meskauskas-mental-health-acceptance/
    Spanish:
    https://www.wapo.org/library/webinar-1-2023-ignas-meskauskas-mental-health-acceptance-spa/
  • WAPO website: wapo.org
  • WAPO 2023 Webinar Series: Planned topics:
Release Date 2023: TOPIC
January 27, 2023 Mental Health Support after Diagnosis
February 28, 2023 Pain in Pituitary Disorders
March 30, 2023 Hypercortisolism – History and Future
April 27, 2023 Transition – from Child to Adult Treatment
May 15, 2023 Hormones
June 29, 2023 Growth Hormone
September 2023, TBC How to Support a Depressive Patient
October 2023, TBC Medication Waste
November 2023, TBC Clinical Trials

 

 

 

https://www.wapo.org/wp-content/uploads/2023/01/Beliefs-diagram.png 357 784 Muriël Marks https://www.wapo.org/wp-content/uploads/2025/11/logo-wapo-worldwide-adrenal-and-pituitary-organizations-1.svg Muriël Marks2023-01-25 16:13:192023-01-27 11:19:09WAPO Website & 2023 Webinar Series

Tag Archive for: diagnosis

WS24 – How can we improve the diagnosis journey – an Acromegaly patient perspective- Rosalind Way (Acromegaly Ambassador, UK)



https://www.wapo.org/wp-content/uploads/2024/11/logo-2-option.png 324 675 Muriël Marks https://www.wapo.org/wp-content/uploads/2025/11/logo-wapo-worldwide-adrenal-and-pituitary-organizations-1.svg Muriël Marks2024-11-07 10:46:002024-11-07 10:46:00WS24 – How can we improve the diagnosis journey – an Acromegaly patient perspective- Rosalind Way (Acromegaly Ambassador, UK)

Acromegaly – Lukas’ story (Dutch – French)

https://www.wapo.org/wp-content/uploads/2024/01/Logo-B-V-24-design-and-year.png 359 573 Muriël Marks https://www.wapo.org/wp-content/uploads/2025/11/logo-wapo-worldwide-adrenal-and-pituitary-organizations-1.svg Muriël Marks2024-02-29 00:03:542024-02-27 14:03:00Acromegaly – Lukas’ story (Dutch – French)

Cushing – Consensus on diagnosis and management of Cushing’s disease: a guideline update

Consensus on diagnosis and management of Cushings disease – a guideline update

https://www.wapo.org/wp-content/uploads/2023/04/Research-globe-image.jpg 1080 1080 Muriël Marks https://www.wapo.org/wp-content/uploads/2025/11/logo-wapo-worldwide-adrenal-and-pituitary-organizations-1.svg Muriël Marks2023-03-21 10:31:062023-04-05 15:19:08Cushing – Consensus on diagnosis and management of Cushing’s disease: a guideline update

Webinar 1-2023 – Ignas Meskauskas – Mental Health & acceptance

https://www.wapo.org/wp-content/uploads/2023/01/WAPO-webinars-2023-image-1.png 574 1018 Muriël Marks https://www.wapo.org/wp-content/uploads/2025/11/logo-wapo-worldwide-adrenal-and-pituitary-organizations-1.svg Muriël Marks2023-01-27 15:54:112023-02-20 11:46:02Webinar 1-2023 – Ignas Meskauskas – Mental Health & acceptance

Webinar 7 – J.G. Beun – Labor and Chronic Illness

https://www.wapo.org/wp-content/uploads/2023/01/webinair-johan-beun.jpg 460 900 WAPO https://www.wapo.org/wp-content/uploads/2025/11/logo-wapo-worldwide-adrenal-and-pituitary-organizations-1.svg WAPO2022-11-17 16:46:402023-02-20 12:20:08Webinar 7 – J.G. Beun – Labor and Chronic Illness

Tag Archive for: diagnosis

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