April 8th is Cushing’s Awareness Day and to mark the occasion, we are thrilled to release a new awareness video entitled “Walk with WAPO through the experiences of people living with Cushing’s disease.”

Watch it here: Walk with WAPO through the Experiences of People Living with Cushing’s disease 

Cushing’s syndrome occurs when the body produces too much cortisol. This is often due to a pituitary tumor that secretes excess adrenocorticotropic hormone (ACTH), in which case the condition is specifically referred to as Cushing’s disease.

In this latest “Walk with WAPO” video, we bring together the voices of eight patient advocates who openly share their journeys. They were asked to answer a series of questions, ranging from what their first symptoms were to their concerns for the future, and this video is the compilation of their replies. Their powerful stories are accompanied by expert insights from Dr. Noa Tal, endocrinologist at the Pacific Neuroscience Institute, who explains the medical aspects of this complex condition.

Structured into chapters, the video offers a comprehensive look at what it is really like to live with Cushing’s disease.

We would like to thank our amazing patient advocates (Claus, Caz, Gretchen, Gunnvor, Malini, Nicky, Rachel, and Stephane), for sharing their experiences, and to Dr. Noa Tal for her medical perspective.

We would also like to thank H. Lundbeck A/S for kindly sponsoring this video.

We hope this video will be widely shared, helping Cushing’s disease gain greater recognition both within the medical community and among the general public. It is only through increased awareness that can we shorten the time to diagnosis and improve long-term outcomes for patients and their families.