Tag Archive for: acromegaly

Early diagnosis for Acromegaly patients – Research Study

Would you like to help Acromegaly patients get diagnosed earlier to improve their quality of life? We are trying to do just that and invite you to help.

Acromegaly, including gigantism, is caused by a growth in the pituitary gland that results in too much growth hormone being made. This can affect external appearance and internal organs causing early high blood pressure, diabetes, heart disease, and many other problems that shortens and impacts the quality of a person’s life. Currently, Acromegaly takes many years to diagnose.

We will be launching an international research study to determine if we can detect the earliest signs of Acromegaly using the latest computer technology. This study is led by Dr. Michael D. Cusimano, a Neurosurgeon and Professor in Toronto, Canada.

If you or a family member have Acromegaly/gigantism or a pituitary tumour, you can directly help by participating in this study. Please look out for an invitation to this study that will provide more information and a secure online link to participate. In preparation of participating, we encourage you to prepare a collection of pictures of your face and/ or hands and feet, as well as any documents you might have about proof of your condition.

If you’d like to learn more or have questions about taking part in this study, please send an email to the research team at acromegaly-research@smh.ca

Thank you for considering participating in this study!

WAPO webinar on this project by Dr Michael D. Cusimano:
English
Spanish

Webinars 2022

Earlier in 2022, WAPO organized a series of webinars with interesting topics, which are visible in the WAPO Library. Now, since Summer is over, we have another 3 interesting webinars for you …

Register via the following link: https://cvent.me/eOyQ4D
Feel free to share with other patient advocates, people living with the disease or their caregivers, or other stakeholders. We look forward to meeting you there.

In case you are not able to join, or want to see the presentations later, please have a look at our Library with all webinars and video presentations we already had.

We are already scheduling webinars for 2023. Please follow our social media to stay informed.

Tag Archive for: acromegaly

2024 Vlog – What makes a successful Patient – Healthcare Professional Relationship

Acromegaly – Lukas’ story (Dutch – French)

WS23 – SPA – Enfoque Belga del Programa de Atención Domiciliaria para Pacientes con Acromegalia – Els Rutten, Bélgica

Webinar 8-2023 – Growth Hormone Deficiency in Child and Adult – Chris Yedinak

Webinar 4-2023 – Depression and the Pituitary Patient – Linda M Rio

Webinar 4-2023 – Depression and the Pituitary Patient – Linda M Rio (ES)

Webinar 5 – D. Badiuk – Guidelines Acromegaly treatment

Webinar 4 – E. Valassi – Research Outcomes Acromegaly & Cushing