Rare Disease Day – February 28 2023

 

February 28, 2023 – Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.

Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse– but united in purpose.

Rare Disease Day is observed every year on 28 February (or 29 in leap years)—the rarest day of the year.
Rare Disease Day was set up and is coordinated by EURORDIS and 65+ national alliance patient organisation partners. Rare Disease Day provides an energy and focal point that enables rare diseases advocacy work to progress on the local, national and international levels.

WAPO supports Rare Disease Day with a webinar on ‘Pain and Stress’ by Emilio Covarrubias (Chile) in English and Spanish. Check our Library on the website wapo.org

Want to read more or download materials, click here